Our Mission

One day, patients with rare cancers will benefit from precision medicine in the same way that those with common cancers benefit. 

The Katie Moore Foundation funds life-saving, collaborative rare cancer research. → Learn More

Our History

The Katie Moore Foundation was established in 2013 in honor of Katie Urbanic Moore. Katie was diagnosed with a rare liver cancer, Fibrolamellar Hepatocellular Carcinoma, in 2012 and was faced with the very difficult situation of having no clear treatment options. Guesswork rather than research drove her treatmentment. She passed away in January of 2013 at the age of 31.

This same story plays out for many patients with rare cancers. They do not have a clear treatment plan and often suffer poor outcomes because of it. We are working to fight this.

We believe that one day, patients with rare cancers will be able to benefit from precision medicine and thereby drastically improve outcomes. 

In 2016 we started a project with the Broad Institute of MIT and Harvard to create a foundation of critical research on rare cancers. Since its founding, the groundwork of collaborative research has taken root.

Click here to learn more about the barriers to developing precision medicine for rare cancers and how the research we are funding is overcoming those obstacles. 

Our Team

Dominic Moore, Founder & Executive Director

Sophie Randolph, Operations & Marketing Coordinator

Joyce Urbanic, Board Member

Amy Cooper, Board Member

Timothy Stay, Board Member

Oliver Jonas, Ph.D., Board Member

Tiana Peterson, Esq., Board Member